I’m sitting in my living room writing this post with a blanket draped over my legs and a sleeping cat taking up half the couch. It’s been like this for a couple hours now because I left work early. I left work early because I’m an idiot.
It all started two days ago, when I went to see my team of
hospital doctors to have them review my annual kidney biopsy and my current
medications and blood levels. One of the
drugs I take, Tacrolimus (aka Prograf), is an immunosuppressant that is
supposed to be maintained at a certain level in my bloodstream. So I
have get blood drawn regularly to make sure the level is acceptable.
I’ve had issues with my Prograf level since I received my
new kidney. One day it’s too high, but
most days it’s too low. According to the
hospital pharmacist, some people have to be on a higher does than what is
considered normal. I’ve taken 2
milligrams twice a day and I’ve taken 12 milligrams twice a day. I’ve even taken zero milligrams in a
day! That’s bad. Don’t do that.
After my most recent lab reading, my doctors determined that
my Prograf levels were a little low so they prescribed me with the drug
Ketocanazole. It’s used to treat fungal
infections but nephrologists may prescribe it to help raise a transplant
patient’s Prograf level. I remember the
first time I took it, about eight months ago, that my mail order pharmacy
almost put the kibosh on me ordering it because of it’s interaction with Tacrolimus.
After my most recent appointment, my nurse called to let me
know that she’d sent in an order of ketoconazole to my pharmacy because my
Prograf level was, of course, running a little low. She told me to start taking
it in the evening. So that night, as I
was preparing to take my evening medication, I remembered that I hadn’t stopped
by the pharmacy to pick up my prescription. But OH! Resourceful me discovered
that I’d had some leftover from the last
time I was prescribed ketoconazole. It
said to take one pill twice daily. So I popped my first pill, got into bed and
when I woke up, I popped another one.
This is how you listen to your gut: If you’re having hot flashes, and shaking
like a crack addict looking for their next hit…you probably took too much
medicine. Pounding headache? You probably
took too much medicine. If you go to
work and are sitting at your desk thinking you’re going to vomit and then you
calmly retreat to the bathroom and proceed to actually vomit…you probably took
too much medicine.
After emptying all of the Chai tea and oatmeal from stomach
into the toilet in the handicapped stall of the 9th floor women’s
bathroom, I called the hospital.
Me: Hi Nurse…Ummm…I got your message yesterday about the ketoconazole. Ummm…how much was I supposed to take?
Nurse: Half a tablet, twice daily.
Me: Ummmmmm OK.
Nurse: Yep, why?
Me: I took too much.
Nurse: You did? How much did you take?
Me: Umm, two full tablets.
Nurse: Two tabs?! What did the instructions on the order I called in to the pharmacy say?
Me: Oh..about that…I just took some of what I had left over from last time.
During lunch, after eating next to nothing, and staring into
sunshiny space while sitting in my company’s courtyard, I made the decision to
leave work early. It’s much easier to
starve and feel nauseated and be on edge
from my couch or bed than it is while sitting at a desk with the office A.C.
blasting over my head.
One BIG lesson I’ve learned about my transplant medicines is
that you just have to go with the flow. One minute everything’s fine, the next minute
you’ve contracted some disease and have to go back on antivirals, or you
suddenly aren’t producing any bone marrow and you have to stop taking this or
that. When you have someone else’s body
parts living inside of you like I do, anything can happen. And you have to be prepared for that, have a
lot of patience, and a lot of trust in your doctors. I have nothing but love for my doctors so if
they tell me to take something, I usually don’t put up a fit. Unless, it’s a shot. Even after seeing so many needles and having
a tube in my stomach I still DESPISE shots.
How has your week been?
How has your week been?
Oh yikes! That wasn't what I really said when I read your post....it was more like OH S***!!!
ReplyDeleteI hope your doing much better now. I take levothyroxine for my thyroid and sometimes I forget to take it for like 3 days in a row...ya, not good. I get the jitters and my heart feels like it is going to jump out of my chest, I also get really moody but it also gives me the feeling of having drank 10 cups of coffee...the house never got cleaned so fast!!!LOL! I'm just glad that you are ok. :-)