It's the last week of summerrrrrrrrr.
I'm sad.
But here's a happy face!
A happy late-summer harvest from our balcony! This year was the first year that Ben and I experimented with gardening. Here you see some super 100 cherry tomatoes and two ripe jalapenos. But we also grew basil and parsley. The mint didn't survive unfortunately. So no...I have not had a mojito all summer long.
Here's some stuff that I discovered on the interwebs recently:
A CNN article about liver transplants .
The reasons I try to stay away from all processed foods and spend my free time slaving away in the kitchen.
One of the things I love to cook when I am slaving away.
Are you a polite person? This essay made me me want to make some changes in how I talk to people.
Do you have kids? If you do, apparently my life is 10 times better than your life in several areas except for happiness.
Hope you had a great weekend.
Monday, September 15, 2014
Web Crawlin'
Topics:
Web Crawlin'
Friday, September 12, 2014
Return to Metro
Last Friday, I FINALLY went back to my original nephrologists at Metropolitan Nephrology. The last time I made an appearance in their offices was apparently in January, and the last time that I was SUPPOSED to go see them, was actually in April, right as I was checking into the hospital for having no immune system.
Returning to your original doctors can be pretty significant. It usually signifies to the patient and to the hospital doctors that things have finally normalized That the kidney can function without me having to go to the hospital every week to get urine and blood taken. That I can take a breather from having to digest all the different lab results and adjust to all the changes in my medications. Returning to my original doctors gave me some peace of mind for once, during a summer that's been hectic as far as doctors visits, lab visits and bouncing levels of white blood cell counts.
Whenever I'm in my original nephrologist's office, I'm always reminded of one thing: that I am lucky. Blessed. You'd think that over time the "congratulations" and "how are you doings" from the nurses and doctors would die down. Yeah, I had a kidney transplant. But it was a year ago. Why all the fuss still? I figure they must see this all the time. But in reality, they probably don't. I think it's more likely that they see someone who's much older than 27. We're talking more like 67, because as soon as I sit down in the lobby at my doctor's office, I get the glances from a few older people, reminding me that I'm the odd woman out. One of these things is not like the other, you know. But I'm more like them than they know. And I'm also unlike them.
As I walk back to the doctor's office before getting my results (everything was normal, minus a 1.9 creatinine level; a tad high), I sit in the "patient's chair" zoning out on my phone. Sifting through the latest articles on Us Magazine and whatnot. One of the nurses walking down the hallway stops and yells into the room, "Jewel! So how are you doing? How's your dad?" And I give her the verbal thumbs up. "It's just so great, isn't it?" she says when I tell her that I feel good. I nod and smile and let her know that it really is.
Returning to your original doctors can be pretty significant. It usually signifies to the patient and to the hospital doctors that things have finally normalized That the kidney can function without me having to go to the hospital every week to get urine and blood taken. That I can take a breather from having to digest all the different lab results and adjust to all the changes in my medications. Returning to my original doctors gave me some peace of mind for once, during a summer that's been hectic as far as doctors visits, lab visits and bouncing levels of white blood cell counts.
Whenever I'm in my original nephrologist's office, I'm always reminded of one thing: that I am lucky. Blessed. You'd think that over time the "congratulations" and "how are you doings" from the nurses and doctors would die down. Yeah, I had a kidney transplant. But it was a year ago. Why all the fuss still? I figure they must see this all the time. But in reality, they probably don't. I think it's more likely that they see someone who's much older than 27. We're talking more like 67, because as soon as I sit down in the lobby at my doctor's office, I get the glances from a few older people, reminding me that I'm the odd woman out. One of these things is not like the other, you know. But I'm more like them than they know. And I'm also unlike them.
As I walk back to the doctor's office before getting my results (everything was normal, minus a 1.9 creatinine level; a tad high), I sit in the "patient's chair" zoning out on my phone. Sifting through the latest articles on Us Magazine and whatnot. One of the nurses walking down the hallway stops and yells into the room, "Jewel! So how are you doing? How's your dad?" And I give her the verbal thumbs up. "It's just so great, isn't it?" she says when I tell her that I feel good. I nod and smile and let her know that it really is.
---
Before I left my appointment, my doctor had to check a urine sample I gave him. I sat in the waiting room reading through my lab slips and appointment summaries and a new sheet that they're handing out to all of the patients. It's a sheet about kidney disease, the risks, how to prevent it and how to treat it. The first question on the sheet read "Are you at risk for kidney disease?" Considering that I was already sitting in a kidney doctor's office, giving me this information seemed like a little too late. But even upon a first read, I couldn't tell if I was still at risk for kidney disease or not, because I no longer have any of the symptoms they usually assign to a person with kidney disease.
As the doctor came out to tell me my urine test clean and that everything was OK, I grabbed my stuff to leave. Before I opened the door, I turned around and yelled "Hey Doc, I was reading this form. I think I may be at risk for kidney disease."
We both laughed.
Monday, September 8, 2014
Living for the Weekend
How was your weekend?
I started this weekend by being healthy. Have you ever heard of SoulCycle? It's the newest spinning workout that everyone from the Kardashians to David Beckham to your mom is doing. Essentially you agree to have someone clip you into a very expensive stationary bike (clipping in makes it so that you can't run away), yell at you to give it all you've got while trying to pedal very fast up a steep imaginary hill, and then you sweat like nobody's business. And it's all done to this sick playlist of music. It was torture. But I think I kind of loved it?
After that I went to a restaurant and proceeded to order chili, mac and cheese and corn bread. Then on Saturday I had mozza sticks at the draft house showing of Maleficent and ate mint oreo custard to end the night.
Then after church on Sunday I had boneless buffalo wings, some fries, and a TALL beer. For dinner on Sunday, I had some of my mom's mac and cheese, corn pudding and turkey wings.
All this to say...yes...I'm going to SoulCycle again on Wednesday.
One other bright(healthy) spot in my weekend: I made my own granola! My adventure in homemade granola cooking will be up on the blog this month.
Welcome to Monday. Godspeed this week.
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| Pre-Church Selfie, Health Granola, bag of Sweaty Clothes |
I started this weekend by being healthy. Have you ever heard of SoulCycle? It's the newest spinning workout that everyone from the Kardashians to David Beckham to your mom is doing. Essentially you agree to have someone clip you into a very expensive stationary bike (clipping in makes it so that you can't run away), yell at you to give it all you've got while trying to pedal very fast up a steep imaginary hill, and then you sweat like nobody's business. And it's all done to this sick playlist of music. It was torture. But I think I kind of loved it?
After that I went to a restaurant and proceeded to order chili, mac and cheese and corn bread. Then on Saturday I had mozza sticks at the draft house showing of Maleficent and ate mint oreo custard to end the night.
Then after church on Sunday I had boneless buffalo wings, some fries, and a TALL beer. For dinner on Sunday, I had some of my mom's mac and cheese, corn pudding and turkey wings.
All this to say...yes...I'm going to SoulCycle again on Wednesday.
One other bright(healthy) spot in my weekend: I made my own granola! My adventure in homemade granola cooking will be up on the blog this month.
Welcome to Monday. Godspeed this week.
Topics:
Life
Friday, September 5, 2014
Sick News
My thoughts on today's news about sick people.
Do you have paid sick days? You know, days that are given to you by your employer to use specifically for times when you fall ill, have a doctor's appointment, or need surgery?
| Photo from Flickr |
At my job, we get 13 paid sick days every year, in addition to a s&*t-load of annual leave to use however we please. Trust me, I know I'm lucky. At Ben's job, the managers just shifted from allowing all of their employees access to UNLIMITED sick days (yeah...that was a thing) to a paid time off (PTO) system. Everyone just gets a pot of days to use however they please. None of them are designated sick and none of them are designated vacation.
Part of my job involves following what happens in the labor world, and I was a little embarrassed to find out that the United States is the only developed country that doesn't mandate paid sick days. And the state that I live in is just one of the 48 states that doesn't require employers to give workers paid time off to use for reasons related to an illness.
I don't know how you feel about that but I think that's pretty messed up. Just like our health care system, the lack of a requirement for sick leave is another way that I'm reminded that people with chronic illness are often left to fend for themselves. Before health care reform, we were forced to face rejection letters from insurance companies saying we were too sick to deserve coverage. Without a federal sick leave mandate, the government basically gives us the "tough luck" speech when it comes to having to take time off to deal with our health.
Well California just became the second state in the country to require that employers give out paid sick leave, at least three days of it. I was in the hospital in April for four days. And that was JUST a hospital visit. Three days of sick leave wouldn't even begin to cover the amount of time I've spent getting lab work done, sitting on an exam table at a doctor's office, or sitting in a hospital bed for four hours getting liquids for dehydration.
Sick leave should NOT be compared to annual leave. None of us added chronic illness to our roster of life events in the same way that people make reservations for sight -seeing tours in Italy for a second honeymoon. Going to the the doctor is not a vacation. Staying in a hospital is not a weekend at the spa. You can choose what day you want to fly out for your trip to Miami. You don't choose what day your body decides to stop working properly.
Tuesday, September 2, 2014
Living for the Weekend -- Labor Day Love
Labor Day
Minus 1
My sister Danyelle had to work and couldn't make it in time for the family photo. But expect to see her in a few weeks for her birthday.
I hope y'all had a great holiday weekend. I hope you ate too much and had to unbuckle your pants. I hope you drank lots of Spanish punch (aka Sangria) and had one too many scoops of fruit pie or cobbler. And I hope you spent as much of it outside, sweatin and smilin', as I did. Labor Day reminds me that me summer is slipping away too quickly in fact. Just three more weeks of my favorite season. *Tear*
The next few weeks will usher in a lot more new content for this blog. And I'm really excited about it. Thanks for allowing me the grace to soak up my favorite time of year, even if it meant that I was away from my computer a little more often than usual.
Stay free.
Topics:
Last Days of Summer,
Life



